After two months of improving, it appears that Thad is now getting worse. He spent a weekend of not sleeping, becoming very child-like and stressing me out greatly. Turns out that he had two things wrong:
1) An infecton in his kidneys. Not uncommon given that he wears a cathater. In fact, that he hasn't had one before is a bit of a surprise. A few days of antibioltics cleared that up nicely.
2) Very high levels of ammonia in his blood. This was getting into his brain and causing the confusion, forgetfulness nad child-like behavior. What does this mean? Well, some oof it could be from the infection. But when you add in the sleeplessness - it means his liver is getting worse.
We were warned some time ago, that as he neared the end, this could happen. He is now taking a liquid which is helping to remove the ammonia. It is helping, but will only work for a relatively brief time. Eventually, the ammonia will be too much and he will go into a coma. Then he will die. How long do we have? I don't know. We just go one day at a tim.
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